ICER Action Center

ICER’s Revised Framework for 2020 Fails to Incorporate Input from Patients and People with Disabilities

Webinar – The ICER Draft Evidence Report on Sickle Cell Disease: An Overview, Next Steps and Expectations

ICER Begins Process of Developing a Report on New Sickle Cell Treatments. Learn More about ICER and its value assessment for sickle cell treatments

Five Ways the Institute for Clinical Economic Review FAILS Patients & People with Disabilities

Americans Agree: QALYs Have No Place

ICER’s Assessments Contain Alarming Flaws:

COVID-19 Assessment

SMA Assessment

MS Assessment 

TRD Assessment

Peanut Allergy Assessment

DMD Assessment

Comment Letters on ICER’s 2020 Value Assessment Framework

PIPC Led a Comment Letter with Over 50 Organizations on ICER’s 2020 Framework

37 Advocacy Organizations Comment on ICER’s 2020 Framework


Headache and Migraine Policy Forum

Institute for Patient Access

American GI Forum of California, AMVETS, Department of California, California Association of County Veteran Service Officers, National Guard Association of California, Women Veterans Alliance 

American Legion Department of California

ICER Announces Possible 2020 Assessments

ICER’s possible 202 assessments include drugs to treat cystic fibrosis, breast cancer, multiple sclerosis, and HIV. Click here to see the list of possible assessments.

ICER Studies: Cardiovascular Disease, SMA, Depression, MS, Duchenne Muscular Dystrophy, Peanut Allergy

The Institute for Clinical Economic Review (ICER) conducts cost effectiveness studies for insurers using the cost-per-QALY methodology. ICER provides guidance on its website for patients and patient advocates to provide direct input related to their experiences with the disease.

Click here to provide patient input. Click here to view the topics and deadlines. Please note the following upcoming formal ICER deadlines per their website:

  • Arthritis: Open Input Period through 4/8/2019. Meeting 10/31/2019: CTAF to an update to its 2017 rheumatoid arthritis assessment
  • Cardiovascular Disease:  4/15/2019: Revised scoping document. 9/26/2019 Meeting: Midwest CEPAC to deliberate and vote on ICER’s report on evidence presented in ICER’s report on additive CVD therapies.
  • Depression: Comment period on Draft Evidence Report OPEN through 4/17/2019. Meeting 5/23/2019: Midwest CEPAC to review evidence on esketamine as a therapy for treatment-resistant depression.
  • Multiple Sclerosis: Public Comments OPEN through April 10, 2019 on the Draft Analysis Report. Meeting 5/23/2019: Midwest CEPAC to review ICER’s assessment of siponimod (Novartis) for secondary progressive multiple sclerosis.
  • Peanut Allergy: Draft Evidence Report: 4/9/2019. Meeting 6/11/2019: CTAF to review ICER’s assessment of treatments for peanut allergy.
  • Duchenne Muscular Dystrophy: Research protocol available. Meeting 7/25/2019: New England CEPAC to deliberate and vote on evidence presented in ICER’s report on treatments for Duchenne muscular dystrophy.