How Do I Get Involved?

The Institute for Clinical Economic Review (ICER) conducts cost effectiveness studies for insurers using the cost-per-QALY methodology. ICER provides guidance on its website for patients and patient advocates to provide direct input related to their experiences with the disease.  Click here to view our ICER Action Center.

Resources and Support to Engage in Value Assessments:

National Health Council: http://www.nationalhealthcouncil.org/Get-Ready-Checklist

PAVE Center: https://www.pharmacy.umaryland.edu/centers/patient-driven-values-healthcare-evaluation-pave/partnerships/

Events

Webinar on July 17, 2019: Value Assessments – the Impact on People with Rare Diseases. RSVP today.

June 20, 2019: House and Senate Briefings Recap

Sign the “Don’t Discriminate on Care” Petition Today!